The management of nursing consists in the performance of leadership
functions of governance and decision-making within organizations employing nurses.
It includes many processes common to all management as planning, organizing,
directing, and controlling. In case of rare bleeding disorders, nurses may encounter
patients who are experiencing acute bleedings or receiving treatments for another
condition. In Haemophilia, the nurse is not only a professional figure but also a teacher
of daily actions, as self-injections of substitutive factors, and a confidant reference
point for patients and their family.
Keywords: Carrier, Caregiver, Haemophilia, Home treatment, Nursing, Replacement
therapy.
